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REiNS International Collaboration Poster.pptx

REiNS Patient Centered Research Poster.pptx

Donoghue_REiNS December 2016_Patient Engagement.pdf

Plotkin_REiNS Patient Engagement Teleconference 11-20-17.pdf


Working Groups

REiNS Patient Reported Outcome Measures Poster.pptx

REiNS Functional Outcomes Measures Poster.pptx

REiNS Neurocognitive Outcome Measures Poster.pptx






REiNS Meetings

December 2016

Blakeley _ REiNS December Meeting 2016_Patient Priorities.pdf

De Witt _ REiNS December Meeting 2016_Enhancing Patient Engagement.pdf

Donoghue_REiNS December 2016_Patient Engagement.pdf

Struemph_REINS December Meeting 2016_Developing PROS using patient focus groups.pdf

June 2017

Plotkin_REiNS June 2017_Roadmap for Patient Engagement.pdf

Akshintala_REiNS June 2017_Strength Testing in NF.pdf

Cannon&Pichard_REiNS 2017_cNF Working Group Update.pdf

Klein-Tasman_REiNS June 2017_Preschool Neurocog Update.pdf

Vranceanu_REiNS June 2017_General QOL Update.pdf


December 2017

Invited Speakers

A. REiNS Introduction December 2017_Plotkin.pdf

B. REiNS PCORI December 2017_Aggarwal.pdf

C. REiNS Patient Representation December 2017_Plotkin.pdf 

D. REiNS Training Researchers December 2017_Merker.pdf

E. REiNS Teaching Patient Reps December 2017_ Claas.pdf

F. REINS Patient Engagement December 2017_Rose.pdf

REiNS Working Group Updates

1. REiNS Functional Group December 2017_Akshintala.pdf 

2. REiNS PRO December 2017_Thompson.pdf 

3. REiNS Tumor Imaging Group Decemeber 2017_Dombi.pdf 

4. REiNS WBMRI Group December 2017_Ahlawat.pdf 

5. REiNS Visual Outcomes Group December 2017_deBlank.pdf 

6. REiNS Neurocognitive Group December 2017_Janusz.pdf 

7. REiNS Biomarkers Group December 2017_Bottegowda.pdf 

8. REiNS cNF Group December 2017_Cannon.pdf

May 2018 NF Forum REiNS Session



REiNS slide template for presentations

REiNS slide template with logo and name_1.pptx


Last updated by Wolters, Pam (NIH/NCI) [E] on Aug 10, 2018