Support
- REINS has received meeting support from the NCI and NCATS. Grant R13CA203289-01 provided support for the December, 2015 meeting entitled, “Developing endpoints to facilitate clinical trials in rare diseases”. Grant R13TR002095-02 provided support for the December, 2016 meeting entitled, “Enhancing patient engagement in neurofibromatosis clinical trials." Grant R13-CA236402-3 provided support for the December, 2018 meeting entitled, “Designing clinical trials for cutaneous neurofibromas, an unmet medical need for patients with neurofibromatosis 1."
- Children’s Tumor Foundation (http://www.ctf.org) provides ongoing support for all of the REiNS efforts.
- We would also like to thank the NF organizations who have provided financial support for patient representatives' travel costs, including the Children’s Tumor Foundation, NF Midwest, NF Michigan, NF North Central, Texas NF, and NF Northeast.
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