Member Information
If you would like more information about the REiNS International Collaboration or are interested in joining a REiNS working group, please contact us at vmerker@mgh.harvard.edu and reinscollaboration@gmail.com
Director’s Council Members
Name  | Institution  | Specialty  | 
Scott Plotkin, MD, PhD Co-chair  | Massachusetts General Hospital  | Neuro-Oncology  | 
Brigitte Widemann, MD Co-Chair  | National Cancer Institute  | Pediatric Oncology  | 
Shivani Ahlawat, MD  | Johns Hopkins Medicine  | Radiology  | 
Rob Avery, DO  | Children’s Hospital of Philadelphia  | Neuro-Ophthalmology  | 
Dale Berg, BS  | N/A  | Patient Representative  | 
Chetan Bettegowda, MD, PhD  | Johns Hopkins Medicine  | Neurosurgery  | 
Jaishri Blakeley, MD  | Johns Hopkins Medicine  | Neuro-Oncology  | 
Frank Buono, PhD  | Yale University  | Psychology, Patient Representative  | 
Ashley Cannon, PhD, MS CGC  | University of Alabama at Birmingham  | Genetic Counseling/Neuroscience  | 
Peter de Blank, MD  | Cincinnati Children’s Hospital  | Pediatric Neuro-Oncology  | 
Eva Dombi, MD  | National Cancer Institute  | Imaging  | 
Michael Fisher, MD  | Children’s Hospital of Philadelphia  | Neuro-Oncology  | 
Andrea Gross, MD  | National Cancer Institute  | Pediatric Oncology  | 
Jennifer Janusz, PsyD  | Children’s Hospital Colorado  | Neuropsychology  | 
Andrés Lessing, MBA  | NF Northeast  | Patient Representative  | 
Miranda McManus, MS  | College of Charleston  | Patient Representative  | 
Vanessa Merker. PhD  | Massachusetts General Hospital  | Health Services Research  | 
Kavita Sarin, MD, PhD  | Stanford University  | Dermatology  | 
Taylor Sundby, MD  | National Cancer Institute  | Pediatric Oncology  | 
Heather Thompson, PhD, CCC-SLP  | California State University, Sacramento  | Speech Language Pathology  | 
Karin Walsh, PsyD  | Children’s National Medical Center  | Psychology  | 
Pamela Wolters, PhD  | National Cancer Institute  | Psychology  | 
Current Working Group Members (as of March 2023)
Name  | PROs  | Cutaneous  | Functional  | Neuro-cog  | Gene Therapy  | Patient Rep  | Bio-markers  | Imaging  | Vision  | 
Mary Achtziger Wong  | X  | ||||||||
Sarah Adsit  | X  | ||||||||
Shivani Ahlawat  | X  | ||||||||
Krizelle Alcantara  | X  | ||||||||
Rosemary Anderson  | X  | ||||||||
Kara Anstett  | X  | ||||||||
Lisa Aouad  | X  | ||||||||
Rob Avery  | X  | ||||||||
Carolina Barnett-Tapia  | X  | ||||||||
Belinda Barton  | X  | ||||||||
Catherine Batlle  | X  | ||||||||
David Bedwell  | X  | ||||||||
Tammy Benson O'Brian  | X  | ||||||||
Dale Berg  | X  | X  | |||||||
Christina Bergqvist  | X  | ||||||||
Yemima Berman  | X  | X  | |||||||
Chetan Bettegowda  | X  | ||||||||
Jaishri Blakeley  | X  | X  | X  | ||||||
Rob Brainin  | X  | ||||||||
Sara Brebbia Dirksen  | X  | ||||||||
Susan Buono  | X  | ||||||||
Frank Buono  | X  | ||||||||
Wenli Cai  | X  | ||||||||
Cynthia Campen  | X  | ||||||||
Ashley Cannon  | X  | ||||||||
Kelly Carpenter  | X  | X  | |||||||
Alexandra Cellucci  | X  | X  | |||||||
Nicolas Champollion  | X  | ||||||||
Long-Shen Chang  | X  | ||||||||
Peter de Blank  | X  | X  | |||||||
Allison del Castillo  | X  | ||||||||
Laura Didier  | X  | ||||||||
Eva Dombi  | X  | ||||||||
Babovic-Vuksanovic  | X  | X  | |||||||
Gregg Erickson  | X  | X  | |||||||
Gareth Evans  | X  | X  | X  | ||||||
Khaled Ezzedine  | X  | ||||||||
Onno Faber  | X  | ||||||||
Laura Fertitta  | X  | ||||||||
Michael Fisher  | X  | X  | X  | X  | |||||
Barbara Franklin  | X  | ||||||||
Edith Garrett  | X  | ||||||||
Madalyn Gibson-Williams  | X  | X  | |||||||
Marco Giovannini  | X  | ||||||||
Dani Glad  | X  | ||||||||
Deborah Gold  | X  | ||||||||
Adam Goodkind  | X  | ||||||||
Kayo Goto  | X  | X  | |||||||
Jane Grabowski  | X  | ||||||||
Vito Grasso  | X  | X  | |||||||
Andrea Gross  | 
  | X  | X  | ||||||
Lorenza Grotti  | X  | ||||||||
David Gutmann  | X  | ||||||||
Diana Haberkamp  | X  | X  | |||||||
Kristine Haebich  | X  | ||||||||
Cindy Hahn  | X  | ||||||||
Oliver Hanemann  | X  | ||||||||
Cynthia Hingtgen  | X  | ||||||||
Matt Hocking  | X  | ||||||||
Eric Hunt  | X  | ||||||||
Maureen Hussey  | X  | X  | |||||||
Kelly Janke  | X  | ||||||||
Jennifer Janusz  | X  | ||||||||
Justin Jordan  | X  | ||||||||
Valerie Kaer  | X  | ||||||||
Matthias Karajannis  | X  | ||||||||
Kim Keeling  | X  | ||||||||
Bob Kesterson  | X  | ||||||||
Hannah Kim  | X  | ||||||||
Aerang Kim  | X  | ||||||||
Yoori Kim  | X  | ||||||||
Bonnie Klein-Tasman  | X  | ||||||||
Laura Klesse  | X  | ||||||||
Kimberley Koetsier  | X  | ||||||||
Edina Komlodi-Pasztor  | X  | ||||||||
Noelle Larson  | X  | ||||||||
Andre Leier  | X  | ||||||||
Erica Leif  | X  | ||||||||
Andres Lessing  | X  | X  | X  | X  | X  | ||||
Robert Listernick  | X  | ||||||||
Elana Loftspring  | X  | ||||||||
Sharon Loftspring  | X  | ||||||||
K. Ina Ly  | X  | ||||||||
Linda Manth  | X  | ||||||||
Staci Martin  | X  | X  | |||||||
Sherri McKnight  | X  | ||||||||
Miranda McManus  | X  | X  | X  | X  | |||||
Vanessa Merker  | X  | X  | |||||||
Elizabeth Morehouse  | X  | ||||||||
Irene Moss  | X  | X  | |||||||
Lara Mukabenov  | X  | ||||||||
Patricia Newman  | X  | ||||||||
Beverly Oberlander  | X  | X  | |||||||
Jonathan Payne  | X  | ||||||||
Drea Peterson  | X  | X  | |||||||
Dominque Pichard  | X  | ||||||||
Rene Pierpoint  | X  | ||||||||
Scott Plotkin  | X  | X  | X  | X  | |||||
Dorothy Pope  | X  | ||||||||
Linda Popplewell  | X  | ||||||||
Natalie Pride  | X  | ||||||||
Marcus Ratley  | X  | ||||||||
Steven Rhodes  | X  | ||||||||
Jonathan Rios  | X  | ||||||||
Inka Ristow  | X  | ||||||||
Bill Riter  | X  | X  | |||||||
Claas Rohl  | X  | X  | X  | X  | |||||
Carlos Romo  | X  | ||||||||
Adam Rosenberg  | X  | ||||||||
Tena Rosser  | X  | X  | |||||||
Jessica Samblanet  | X  | ||||||||
Kavita Sarin  | X  | ||||||||
Herb Sarnoff  | X  | X  | X  | X  | |||||
Natalie Schneider  | X  | ||||||||
Elizabeth Schorry  | X  | ||||||||
Mary Sell  | X  | ||||||||
Steven Sheard  | X  | ||||||||
Dani Silverman  | X  | ||||||||
Brittany Simpson  | X  | ||||||||
Melissa Smith  | X  | ||||||||
Connie Sorman  | X  | ||||||||
Verena Staedtke  | X  | ||||||||
Pete Stavinoha  | X  | ||||||||
Anat Stemmer-Rachamimov  | X  | ||||||||
David Stevenson  | X  | ||||||||
Taylor Sundby  | X  | ||||||||
Heather Thompson  | X  | X  | X  | ||||||
Nicole Ullrich  | X  | X  | X  | ||||||
Meena Upadhyaya  | X  | ||||||||
Marjan van de Vrie  | X  | ||||||||
Dave Viskochil  | X  | ||||||||
Jeremie Vitte  | X  | ||||||||
James Walker  | X  | ||||||||
Jo Wallace  | X  | ||||||||
Deann Wallis  | X  | X  | |||||||
Karin Walsh  | X  | ||||||||
Shannon Weaver  | X  | ||||||||
Hannah Weisman  | X  | ||||||||
Bradley Welling  | X  | ||||||||
Brigitte Widemann  | X  | X  | |||||||
Tracy Wirtanen  | X  | X  | |||||||
Pierre Wolkenstein  | X  | ||||||||
Pamela Wolters  | X  | X  | |||||||
Linda Yew  | X  | X  | |||||||
Jiangbing Zhou  | X  |